The Medical Informatics Initiative (MII) and the BMBF's Network of University Medicine (NUM), as well as accompanying BMWK projects such as HEAL TH-X and TEAM-X, which are flagship projects for Gaia-X-based data spaces in the healthcare sector, have each developed sustainable and relevant data spaces and data trust models and concepts. While MII and NUM focus on secondary data use, the Gaia-X projects have established very patient-centered approaches.
This application aims to combine these two approaches: While MII and NUM provide a solid solution for secondary data use of health data based on Broad Consent with the Research Data Portal Health (Forschungsdatenportal Gesundheit, FDPG), the HEALTH-X approach complements this with an application-oriented release of specific health data by the data subjects themselves.
Charité will contribute with its expertise as Health-X consortium leader and its data integration center as well as its design as a data trust model, exemplary for the MII.
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If we caught your attention, you are interested in our work and would like to get in touch with us, please contact us via franziska.mueller@bih-charite.de